Frequently Asked Questions - Making a Survivorship Care Plan
You will need the information listed below to complete a Treatment or Survivorship Care Plan.
Please note: A Cancer Care Plan is intended to be a summary document whose purpose is to assist the healthcare team in coordinating care for the patient after active treatment ends. A Cancer Care Plan does not replace the medical record and a complete medical history provided by the patient.
- General Information: Contact information for the patient and their care team. This is important for the coordination of care.
- Background Information: Basic information on the patient’s medical background and diagnosis, including family history, genetic testing, surgeries, chemotherapy and other health concerns. Again, this is not comprehensive or meant to replace the patient's complete medical record.
- Treatment Plan: Key information about the planned course of cancer treatment.
- Treatment Summary: Summary information describing the actual course of treatment, including changes to the treatment plan, serious toxicities, hospitalizations during treatment, additional surgeries and medications.
- Follow-Up Care: The follow-up testing schedule, preventive care recommendations, and any additional needs, concerns, interventions or referrals.
It can take anywhere from 15 to 60 minutes to make a Treatment or Survivorship Care Plan. The amount of time will depend upon how available the needed information is within your medical record system. If you use a cancer registry software like CNExT (by C/NET Solutions), ERS, Elekta or Rocky Mountain Cancer Data Systems, you can import most of the treatment summary from your registry system to the Cancer Care Plan Builder (Survivorship Care Plan Builder).
Wherever possible, the Cancer Care Plan Builder provides selection lists, checklists, calculators and other utilities to make the creation of Treatment and Survivorship Care Plans as quick and easy as possible.
Treatment Plans, Treatment Summaries and Survivorship Care Plans are usually prepared by an oncology nurse, nurse practitioner or nurse navigator. They may also be prepared by the oncologist. They may be started by one person—for example, a cancer registry technician or lay navigator—and completed by another (such as the oncologist or oncology nurse).
The Cancer Care Plan Builder (Survivorship Care Plan Builder) is intended to be used by healthcare professionals. However, some patients may not receive a Plan from their oncology provider or they may simply wish to collaborate more closely in their ongoing care. For these patients we provide My Care Plan, writable PDF form for patients to assess their ongoing needs and initiate the survivorship care planning process.
You can open and edit a saved Care Plan by selecting Open from the File menu or Care Plans sidebar (or by pressing Ctrl + O). You can also choose from a list of recently opened Care Plans at the bottom of the Start Screen.
The Cancer Care Plan Builder (Survivorship Care Plan Builder) includes Care Plan templates for several common cancer types. These are available when you open the Care Plan Builder or select New from the File menu or Care Plans sidebar. Select a template to create a new Care Plan.
Please note: If you want to create a Care Plan for a patient with another type of cancer, you can either use the generic template or you can build your own template.
Please note: A Survivorship Care Plan is intended to be a summary document whose purpose is to assist the healthcare team in coordinating care for the patient after active treatment ends. A Treatment Plan or Survivorship Care Plan does not replace the medical record and a complete medical history provided by the patient.
Survivorship Care Plan Sections
All of the Care Plan templates have 5 sections, which are available at the top of the template as shown below.
Section 1: General Information
Here you'll enter contact information for the patient and his or her care team. This is important for coordinating care.
Section 2: Background Information
Here you'll provide basic information on the patient’s medical background and diagnosis, including family history, genetic testing, surgeries, chemotherapy and other health concerns. Again, this is not comprehensive or meant to replace the patient's complete medical record.
Section 3: Treatment Plan
Here you'll enter the patient's planned course of treatment. In the cancer-specific templates (lymphoma, breast, colon and lung cancer), you can select the chemotherapy regimen from a list of commonly used regimens. In the generic template, you must enter the individual therapeutic agents and schedule for the patient.
Section 4: Treatment Summary
Here you'll enter summary information describing the actual course of treatment, including deviations from the treatment plan, serious toxicities, hospitalizations during treatment, additional surgeries and medications.
Section 5: Follow-Up Care
Here you'll select the follow-up care schedule, preventive care recommendations, and any additional needs, concerns, interventions or referrals.
The Survivorship Care Plan Builder (SCPB) includes several types of fields, including:
- Text fields: Enter information with your keyboard.
- Selection lists: Select from a list of values or enter information with your keyboard.
- Date fields: Type in a date or select a date from a calendar.
- Checklists: Select 1 or more item from a list.
- Radio buttons: Select 1 of 2 or 3 choices.
You can also leave fields blank. With the exception of the care team contacts, fields that you leave blank will not appear in the printed Survivorship Care Plan.
Managing an Autocomplete List
Many text fields have autocomplete, which means that previous entries are remembered and available for selection. To remove an entry, such as a misspelled name or out-of-date phone number, right-click in the text field to display the autocomplete list and select the item you want to remove.
Moving Between Sections
To move between sections, use the links at the top or the Previous and Next links at the bottom.
Delete a Care Plan the same way you delete any file or document. Use Windows Explorer to find the file (normally in My Documents/Survivorship Care Plans unless you changed the save location in Preferences). Right-click on the file and select Delete.
The Cancer Care Plan Builder (Survivorship Care Plan Builder) currently makes Care Plans in English only. However, you can add educational factsheets in other languages to the Survivorship Library and attach these to your Care Plans.
Journey Forward's Survivorship Library includes hundreds of articles and factsheets for survivors and their healthcare providers. It may also include documents that you yourself have added.
You can attach any of these documents to individual Survivorship Care Plans. To do so, open the Care Plan and select Print. Then select Add/Remove Documents. Add a library document by selecting it from the list on the left and then selecting the > (Move right) arrow. Remove a document from a Care Plan with the < (Move left) arrow. When finished, select Done to save your changes.
When you select Done, you will see the documents you selected now listed in the Print dialog.
Tip: Press Shift and the up/down arrow to select more than one item from the Library. To move an entire category of documents select the header.
Save an open Treatment or Survivorship Care Plan by selecting Save from the File menu or Care Plans sidebar (or by pressing Ctrl+S).
The first time you save a new Care Plan, the Medical Record Number will be suggested as the file name, provided you entered one. By default, Care Plans are saved in a folder named Survivorship Care Plans in My Documents. If your organization does not permit patient data to be stored on a local hard drive, you can save Care Plans elsewhere like on a secured, shared, internal network. You can change the default save-location for Care Plans in Preferences.
Select Save As to save a Care Plan under a different file name or in another location.
NOTE: On occasion, when users save their first Care Plan, they receive the error message: “Your Care Plan has been saved; however, you do not have sufficient user rights to save configuration information….” This happens when the folder where the SCPB configuration file is stored is designated as read-only. Until you clear this error, changes to the Regimen Setup, Survivorship Library, Custom Templates and autocompletion lists are not saved.
To correct this issue, ask your IT department to remove the read-only property from the following folder:
- On Windows 8: %PROGRAMDATA%\NearSpace\Survivorship
- On Windows 7: %ALLUSERSPROFILE%\NearSpace\Survivorship
- On Windows 10: %ALLUSERSPROFILE%\Application Data\NearSpace\Survivorship