Registry & EHR Integration

We'd like to work with you to enable your cancer registry or EHR product to export Care Plans that can be completed with Journey Forward's Cancer Care Plan Builder. Here is some information to help you get started:

General Information

Technical Information

About the Cancer Care Plan Builder

Journey Forward’s Cancer Care Plan Builder is helping set a new standard in care. 

  • Journey Forward Care Plans are aligned with the Commission on Cancer (CoC) 2015 Standards 3.1 - 3.3. See A Solution for Complying with Standard 3.3: Survivorship Care Planning, The CoC Source, December 2013.
  • Journey Forward Care Plans meet the Institute of Medicine (IOM) recommendations from their 2005 report, “From Cancer Patient to Cancer Survivor: Lost in Transition.”
  • Primary care providers strongly agree that Journey Forward Treatment and Survivorship Care Plans are easy to understand (95.7%), the right length (73.9%), address the right topics (95.7%), are useful in talking with patients about survivorship plans (91.3%), and improve communication with oncologists (74.4%) and with patients (74.4%). See also “Primary care providers’ evaluation of survivorship care plans” (J Clin Oncol 30, 2012 (suppl 34; abstr 188).13

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Components of a Survivorship Care Plan

Care Plans created with the SCPB have these components:

  1. Care team contact information to facilitate the coordination of care
  2. Background information on diagnosis, staging and other major comorbid conditions
  3. Brief summary of the planned and actual treatment
  4. Schedule for follow-up care including test/visit, provider to contact, and the timing/frequency
  5. A psychosocial assessment
  6. Information on symptom management, possible late effects of treatment, symptoms to watch for, what to expect, etc.

Survivorship Care Plans are typically created by an oncology nurse, a nurse navigator or a lay nurse. Less often they are completed by the oncologist. Generally:

  • Sections 1-3 (care team contacts, background information and treatment summary) are filled out in advance of meeting with the patient.
  • Sections 4 and 5 (follow-up schedule and psychosocial assessment) are filled out with the patient.
  • Section 6 may be discussed with the patient and is, ideally, provided as take-home information.

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Data Sharing Opportunity

The sections of the Care Plan that takes the most time to fill out are sections 1 - 3, care team contacts (providers), background information and treatment summary. Fortunately, most of this data already exists in the practice's cancer registry. As much as 80% of the first 3 sections can be pre-populated from data in your registry.

The SCPB creates an individual file for each patient and each Care Plan. Care Plan files have the extension .scpb. However, they are actually XML files with a defined XML schema. That means that if you are able to export patient data in an XML format, it is possible for your registry to populate many of the fields in the SCPB.

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Typical Workflow

As mentioned previously, the Care Plan is completed by the oncology practice overseeing the patient. Generally, these people do not have access to the registry. How then does a Care Plan get initiated? In some practices, the oncology provider will send a list of patient records numbers with a request for the exported files to their registrar. In other practices, the exports are done on a pre-arranged schedule. In both these instances, the exported Care Plan files are typically saved to a secured, shared network drive available to both the registrar and the oncology practice.

Some registry vendors, like C/NExT, enable oncology practices to have access to the registry with permissions limited to exporting Care Plans only.

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Technical Overview

Here you can download technical instructions for exporting XML files that can be read by and completed in the SCPB: How to Export an SCPB Care Plan from a Cancer Registry System.

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Care Plan Templates, Field Database & XML Schema

The SCPB has templates for several common cancer types, including:

  1. Breast cancer
  2. Colon cancer
  3. Lung cancer
  4. Lymphoma
  5. Generic (for other cancer types)

The SCPB also enables users to create custom templates.

Each cancer-specific template has an associated XML schema. Those schema are attached below. Also below you will find an Excel workbook with the database of fields in each Care Plan template. On your end, you will need to create a report template for exporting patient data based on each of the 5 schemas.

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Of course, you will also need to implement an “Export Survivorship Care Plan” option within your registry interface. This function will export all available data for a specific patient or group of patients based on the report templates described above. It is up to you whether you want to enable Care Plans to be exported individually, as a batch file or both. We find that both methods are desirable.

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Survivorship Library